Showing posts with label hepatoblastoma. Show all posts
Showing posts with label hepatoblastoma. Show all posts

Tuesday, April 28, 2015

Our Beloved Gable!

Oh what a joy it is to share with you about our wonderful son, Gable Philip YiJun!



We met him on Monday, April 20, 2015. We traveled to Chengdu, Sichuan (where the yummiest food of all China is...and the spiciest!) and went with some special friends to his orphanage. We were signing some paperwork when we heard them say, "Here he is!" And in came JunJun, carried in the arms of a woman who has spent her past two years loving and caring for him.

We took our time. I had been prepared that he might pitch a big nasty fit because he was so attached to his caregiver, and she him. We spent time just talking with him as she stayed in her arms. We put our foreheads together. I handed him a teddy bear Toby and I had chosen for him at Chocolate World the week before. He pointed to my picture and then at me, "Mama," he told me.

After about 6-7 minutes, we began the handoff. He came timidly, but without tears. He whispered "mama" after I would say it. I then pulled out a few goodies from the "bag of tricks" we adoptive families take to meet our kids. It was the bubbles that we played with out on the porch that coaxed the first teethy grins and began the bonding between the two of us.

One amazing blessing that I never saw coming was the presence of a gentle, kind woman named Christine Keegan. She is a photographer living in Chengdu and had been dreaming of capturing these first moments for an adoptive family...but had not yet had the opportunity. We were beyond belief blessed to be that first family! She has posted a stream of her work on her blog. You can see those pictures here: http://homemadeinchina.blogspot.com/2015/04/a-gotcha-day-story-beginnings.html


We were doubly blessed by being able to stay with some other friends, the Holloways, while we were in Chengdu. They work during the week at a school, so we had their apartment during the day and were absolutely delighted to share time together in the evenings. What a JOY JOY JOY they are! Brandi and I had originally met at Shriner's hospital in Philadelphia when both of our sons (adopted from China) with arthrogryposis were being treated. Each member of their family is a joy and her husband made us laugh so much with his stories of music in China! We would love to come back and see them again!

In the subsequent days, we have just deeply enjoyed getting to know Gable. He is an incredibly SMART little boy and after one time of me teaching him the sign language for "more" he began asking for food that way. His soft sweet little voice saying ,"mo'" looking at me for another bite melts me each and every time.

He took his time learning to eat...he batted most things away before trying them. He's got a serious sweet tooth that may be the reason for his adorable chubby cheeks! I asked the orphanage caregivers what his favorite food was and was a bit shocked when they told me, "candy!" I can see now that they were 100% on!

He is the perfect mix of compliant child and energetic giggles. He can be a challenge to change his clothes as he thinks its the perfect time for a game of "run-from-mommy" complete with giggles that will melt your heart. But in general he is an easy going, happy boy. 
 

He is also super snuggly, a great sleeper and has decided that he MUST have his mommy almost all the time!

(This was taken during the medical exam required for getting an American visa. He was more frightened by the doctors than anyone I've ever seen.)

Evidence of his cancer is found on his multiple scars around his body from the ports and 7" incision across his belly where they went in to remove the malignant tumor. We were given a picture of him with his surgeon that the orphanage wanted us to have. I think that our Gable was really special to them. They requested a special goodbye before we left that day.

Healthwise, he appears to be completely normal. We have an appointment scheduled for the end of this week back home with a pediatric oncology team. Typically in a case like his, they would do monthly follow ups after the surgery and chemotherapy. That has not happened. We will be so anxious to hear how he is doing from a medical standpoint.

His adoption process could not have gone smoother in country and we will receive his visa today. We fly home tomorrow and are so so anxious to be together again as an entire family! Here you can see him interacting with some of our other kids using FaceTime! 


What a joyful journey it has been to return to China for this son of ours!

 



Saturday, November 22, 2014

First Fundraiser for Gable--Mercy Shirts!!!!

Hey EVERYONE!!

I'm bursting at the seams with excitement to roll out our new fundraiser shirts!!


Read more about this design below.


WHY in the world are we doing this AGAIN????


He is why.

{Oh my heart.}

We need to get Gable home so we can properly care for his cancer. (Hepatoblastoma.)

And to love on him silly.

Oh those chubby cheeks!!

This design is something I created over the course of a few days (with some awesome feedback from a few of my peeps!) based on an image I saw in my mind from Hosea 14:3, "In You, O Lord, the orphan finds mercy." The silhouette is specifically God the Father holding our little Gable...safe and sound in His arms of love...but it is to represent the loving care He gives to EACH of our children.

And all of us who have adopted these precious treasures formerly known as "orphans" KNOW what a blessing it is that the Father has mercy on them (and us) and unites us together in heart.

What is going to make this Tshirt/hoodie EXTRA SPECIAL is that it's going to have names of YOUR beloved children on the back! What?? That's right! ALL of our precious kiddos get listed on the back en masse as orphans who've been shown mercy from our gracious God.
This is an example of what our shirt will look like with YOUR children's names on the back!

Yay!!!

The back space is going to be limited, so this will be open for your submissions and T shirt and hoodie orders only for TWO WEEKS. We want to get right on printing and shipping these out to you so you'll have them in plenty of time for Christmas giving! Cut off date for orders will be DECEMBER 7, 2014.

Order using the tab at the top "Mercy Shirts for Gable" or click HERE.

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Monday, November 3, 2014

Gable's Story…from Another Perspective


We all love a good story…and today I'm going to give you a unique opportunity to observe the adoption of Gable from another angle…my new friend Mimi's.

Who is Mimi? She's a rockstar, Jesus-loving, momma to 11 children. She has adopted some, given birth to others and is a beautiful testimony of walking with God through the hard very hard things.

She's also the momma I was connected with to learn about Gable's special need: hepatoblastoma.

Cuz I had NO CLUE what that meant. (other than "scary cancer.")

Why is Mimi an "expert-in-residence" you may ask? Because her own sweet son has this very same cancer. (Above is a picture of Mimi holding sweet baby Asa.) I received Mimi's name and contact information within 48 hours of learning about Gable. 

But read on to find out JUST HOW EXCEPTIONAL it is that we were connected!

Here's what Mimi blogged on her blog just yesterday:

I haven’t mentioned it here, but a funny little blip came across my radar two months ago.  At that point, we were truly just holding our nose above the drowning waters, knowing we were past the big waves. I got a random message from someone I know very loosely.  She knew Asa had liver cancer and asked if I would be willing to offer counsel to a family who was considering adoption of a child with liver cancer. Easy answer.  But, of course.  And I sat back and began to watch God show off.

Two years ago, not too long before Asa came along, a little boy was born to a Chinese couple, a little boy with a big liver tumor that made his belly stick out like Asa’s did.  And the same couple, I’m sure distraught with the one child policy and the thought of their only heir being imperfect, sickly, left that babe at a hospital.  Diagnosis: hepatoblastoma, the one in a million kid cancer that Asa had, the one that Texas Children’s, one of the few hospitals in the states that treats this cancer, only sees 10 cases a year from all over the southern US. But what happens next is entirely strange.  Instead of getting pitiful orphan care, this Chinese boy got top-notch, cutting-edge medical treatment.  He was stabilized, whisked in and treated with chemo-embolization – chemo straight to his liver and he went through exactly what Asa went through, the horrid secondary effects of sloughing off tumor, called tumor lysis, and he victory of all victories, survived.  It was a long hard road, but it appears, as it does with Asa, no more cancer.  He was put in an orphanage, group type home and he thrived, but no one adopted him, because that big C word, it’s scarier than a lot of more obvious physical disabilities.

But along comes a family, a family who has experienced their own loss, a family who just so happens to speak Mandarin, but God has yanked them up and dumped them in the rural central US, filled their home with a few other physical disabilities, and left them, left them a few hours from the other major hospital in the US that deals with this one in a million chance cancer.  Their house is full, very full, but along their radar comes a smiling face, a familiar face, because dark eyes and round faces are still on their hearts, and a boy named Jun Jun captures them.

And then I was called for counsel.  What is hepatoblastoma?  What does this mean?  Do you understand these medical records?  I was called, the parent of a child treated not only for this cancer, but with chemo-embolization, not a standard procedure in children in the US for this cancer.  Tony and I may be the only parents in the US at this time that would have that experiential knowledge regarding a child. Explain that. You can’t.  But God.


The story departs to a weird, seemingly diverted path at this point.  After all the discussion, the couple who inquired suddenly decided that they weren’t so sure that God was calling them to this child and went to prayer and as back up, they held their arms out and handed Jun Jun to us, the only other couple without gross fear of his condition.  And we were left for a week or so to wrestle in prayer for this boy, and wrestle with the fact that we are a bit older than this couple.  During that week, God turned the world upside down on behalf of this boy.  People began offering this other couple serious money for adoption expenses, expenses on an adoption they weren’t even decided upon, an adoption they hadn’t even announced.  Someone offered to take their special needs kids while they went to back and forth to China – twice.  After this and prayer, it became abundantly clear where Jun Jun was supposed to be.  And after jumping a few more hurdles, last week Jun Jun was cleared by China to be adopted by this family.

And today I sat in church and listened to a man speak about God’s heart for the widow and the orphan and I was again reminded through another story that God truly moves mountains upon their behalf and again, I saw God weave deep redemption from suffering. Dark doesn’t win.  Light does, no morbid second act where all goes wrong.  Great joy! The end game is settled. 



Did you catch that??? There was SO MUCH in what Mimi wrote…let me lay it out so you can marvel over what our MIGHTY GOD has DONE!

* Gable, an orphan, has received TOP NOTCH cancer treatments in China. Amazing. What he has had done is considered experimental in the United States. (Incidentally, he's also had a successful liver resection meaning he will not need a transplant and run the risk of his body rejecting it or being on anti-rejection drugs for his life.)

* We live just 5 hours from one of the two BEST hospitals for treating hepatoblastoma. And we already take Esty there.

* Mimi is a parent of a son who is STILL going through treatment for his hepatoblastoma. After the icky cancer treatments failed him, he was given the kind of chemotherapy that Gable had as a last resort. It is working, but it is UNBELIEVABLY RARE that I would be connected with a parent in the States who has had experience with this type of treatment. (And she loves Jesus!) At one point along the way, she asked me if I had any clue how crazy it was that I was able to talk with her about all of this. I didn't…"was it rare?" I asked. She answered, "BEYOND RARE!!" Yep. That's God at work!

* Mimi was along for the ride while Brian and I wrestled in prayer about actually adopting again. (Oh we were SO DONE. We are so busy. So overwhelmed. So spent. BUT GOD.) She was able to cheer alongside, pray alongside and root for us as we sought to say YES to God. 

* We were promised finances to bring Gable home before we ever said yes to his adoption. That has NEVER happened before!

* We have precious people who are asking us if they can stay with our children when we travel to bring him home. (As a momma, this is one of the big concerns when adopting internationally…and God has taken care of this EVERY. SINGLE. TIME.)

I thought you might enjoy hearing a little bit of the back story to how we arrived at our decision to adopt Gable…from that unique perspective that Mimi has shared.

Following God continues to prove to be a wild adventure and it is SO MUCH FUN to see how His hand weaves all the millions of details together for our good.

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Sunday, November 2, 2014

Orphan Sunday…introducing Our Soon-to-be-Son!


Source: Hope for Orphans

It's Orphan Sunday today and I am bursting at the seams to introduce you to our newest son!!!

I announced last week that we have been moved by God to adopt again, and we are branching out into a scary new special need: cancer. 

And the questions began…so let me offer up some details!

As of last week, we have officially been approved by his home country to adopt him!

He currently lives in an orphanage that partners with Half the Sky in a provincial city in China.

He is almost 2 years old. (He will be our caboose!)

He is adorable. (and we know we are a bit partial!)

He will be given the English name Gable. (Daddy named him!) Gable is an awesome name we've never heard ever (yes!!) and it means "Strong man of God."

Perfect.

And now…for his pictures:



These were the first I ever saw…the ones that Toby exclaimed, "Oh Mommy! I LOVE him!" about.
It is this non-smiling picture that I realized he was ours. That face. That sweet, sweet, uber precious face!!!!

Gable was only 14 months old in these pictures. Since then, there was a visit to his orphanage where I was able to grab this picture from the end of a video where he smiled. This was taken just this past August at 19 months of age:


WHAT. A. CUTIE. PATOOTIE. (I know!!)

So, now you have a face for whom to pray. And we will begin fundraising ASAP!

The other question people want to know is WHEN. We pray that we could get all our clearances and funds to bring him home during the summer next year. Please join us in this prayer.

So happy to have yet another orphan on his way home to his FOREVER FAMILY!!! My arms are aching to hold and snuggle this precious one!


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Friday, October 24, 2014

When Intentions Don't Match Up with Reality…Part 2



Okay, so I guess I learned that I am LOUSY at doing part 1 and part 2 posts!! (Forgive me.)

But people, it's now time for PART TWO.

If you don't know what I'm talking about, you would be ahead of the game to read PART ONE here.

And now…on to part two. (WAIT A SECOND...I know you skipped part 1!! GO READ IT, SILLY!!)

I concluded part 1 with a list of how we can act in the face of something that takes us by surprise…we can look at it from our limited human perspective, or take on God's perspective.

Because sometimes, life throws something at us that we NEVER saw coming.

And so it is with us. Now.

Up till now, we have dealt with a long list of medical diagnoses which include (but Lord knows are not limited to): collapsed lungs, thyroid disease, arthrogryposis, scoliosis, concussions, spina bifida, congenital hip disorders, neurogenic bladder and bowel and a multitude of broken bones.

Never did I foresee this one being added to the list.

GULP.

The "C" word.

But there it is, big and ugly. Seeking to kill, steal and destroy.

But God.

Let me tell you a story.

Once upon a time, in a land far, far away,  a baby was born.

He was a boy.

Soon after as he was born, it was discovered that he had an odd shaped abdomen. He was pale, listless and clearly something very scary was wrong. 

A frightened set of parents did what was illegal, and unimaginable: they abandoned him. 

Maybe they knew that they could not possibly pay to have the proper treatments. Maybe they knew an orphanage would. Or they could HOPE.

Once found by the police and taken to a local orphanage, an exam was performed. Blood work was taken and the worst news possible was delivered: the newborn child had a massive malignancy in his liver.

Hepatoblastoma.

Incredibly rare. Incredibly scary.

And he was alone.

Over the next months, the baby had 3 surgeries and lots of chemotherapy.

The baby was given special care in the orphanage through a program called Half the Sky. He began to gain weight, hit milestones and a very bubbly personality emerged.

And the boy's papers were prepared so that he could find a permanent home.

He waited. And waited. "Cancer" is a very scary word on a file, you see.

Far away, in another corner of the world lived a mother of seven children. She was busy each day making food, washing clothes and encouraging other people in their own adoptions. She had a VERY FULL life and was not looking for more work.

She was not. She was not.

Her social worker alerted her to the upcoming expiration of her family's home study, to which she and her husband adamantly responded that they were letting it expire as they were DONE ADOPTING CHILDREN. Their family was full.

And expire it did.

But God.

God used the adorable boy on the side bar of this blog "Jesse" to crack open that tightly shut door of their hearts. Perhaps they COULD find room in their home for one more? But after further prayer and consideration of ages and physical needs the answer was clear: he was not theirs.

Once this cracked door let in light…God showed the picture of the baby to this momma of seven children. Her youngest child happened to be sitting on her lap at the time the picture popped up on the computer screen.

"Oh Mommy!!!" he cried. "I LOVE HIM!!"

The busy mother paused as her heart began to pound and tears began to well. In the next 48 hours God did some of the most amazing and supernatural acts to show this mother and her husband that He intended for this boy with cancer to come home to them and to become their son forever.

Gulp.

And they still were not sure. They wanted MORE proof.

So they prayed. 

And prayed.

And asked for other people to pray that God would speak CLEARLY to their hearts.

One person in particular (oh what a blessed woman of God she is!!) responded to the request for prayer in a most unusual way.

She told this family she would personally give them $10,000 to bring him home.

And they were stunned. But still unsure. It wasn't until she gave them a detailed plan of how she would raise these funds for this boy to become theirs that they finally realized that MAYBE this was how God was answering their prayers for clarity!!

And all of a sudden, a flurry of activity began. 

Applications, fingerprints, home inspections and personal interviews were underway. A home study had to be prepared!!
(This is funny to someone, I am sure!)

And then, yesterday, after a very long wait, this family got the news that this boy's home country had approved them to adopt this boy with cancer.

They were OVERJOYED!!!!!

They would boldly welcome this dear child into their family of 9 and grow once again. 

~
(I want to say, "the end" but you guys know that this is NOT the end of the story!!)

And so, with great JOY JOY JOY in our hearts we announce that yes,

WE ARE ADOPTING AGAIN…even though OUR plan was to be all done.

Even though our idea was SEVEN…God's idea was eight!!!

And as you may already know, GOD WINS!!!! 
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